Sources of informtion on Rare Diseases on the Internet

Abstract

It presents an ongoing study that aims to investigate how the area of Information Science works in sharing the sources of information about rare diseases. Developed from the perspective of the evidential paradigm, classified as qualitative, in terms of its approach; applied, as to its nature; exploratory, as to its objectives; bibliographic / documentary, as to its procedures. Data collection will be carried out through the use of web portals, virtual library and defined repositories. It expects to verify that the Information Science area acts in an incipient way in sharing the sources of information about rare diseases.

Keywords: Information Science; Rare deseases; Information sources.