"Não é um sangue igual aos outros"

estratégias metodológicas para compreender a doença falciforme pela perspectiva de crianças e adolescentes

Abstract

This study addresses the children and adolescents conceptions about sickle cell disease. The “sickle cell anemia” as well-known, is a genetic disease that carries the race marker, since the black population is the most affected. This is a study carried out with affected children and adolescents in the state of Paraíba, whose parents/guardians are members of the Paraiba Association of Hereditary Anemia Patients (ASPPAH). The Association was the mediating institution in accessing the research participants, carried out in four cities: João Pessoa, Campina Grande, Areia and Santa Rita. Methodologically, semi-structured interviews were conducted with the adolescents, while guided drawing production interview with children. Through this approach, it was possible to understand that children and adolescents relate the disease to the restrictions that it causes and that there is knowledge about how the disease is present in the body, through the blood.